The primary aim is to fund research into finding more targeted and less harsh treatments for rhabdomyosarcoma by working with centres of excellence for cancer research and treatment. This involves funding salaries of Scientists, Research Assistants and Research Nurses involved in ground-breaking clinical trials from the laboratory to the hospital. In addition we provide equipment and materials to support this work. We also support the children and families impacted by this disease by providing medicines and support that help ease the treatment process.
Alice’s Arc works in conjunction with the Institute of Cancer Research (ICR), The Royal Marsden (RMH) and Great Ormond Street Hospital (GOSH) to help improve outcomes for children and adolescents with rhabdomyosarcoma. The ICR and the RMH together are ranked in the top four centres for cancer research and treatment worldwide. These institutions work closely with the children at the RMH and GOSH and the European Paediatric Soft Tissue Sarcoma Study Group (EpSSG) who design and run clinical trials across Europe to develop better treatments for young sarcoma patients. EpSSG also collaborates closely with the US Children's Oncology Group (COG) ensuring that valuable information is shared worldwide.
Alice’s Arc raises money to help support these centres of excellence conduct their research by funding the salaries of key staff as required, providing equipment required and other ad-hoc requests. It also fundraises to help provide medicines that make the treatment process easier for patients and their families. For example, drugs such as neulasta which aren’t readily available to children in the UK and help to stimulate white blood cells to reduce the risk of infection after chemotherapy.
Alice’s Arc has no paid employees and no overheads. Every penny donated will go direct to the charity’s work. So whatever you can give or pledge, you know it will make a difference to a child with cancer.
Sarcomas are cancers that can resemble bone or soft tissues. Rhabdomyosarcomas are the most common soft tissue sarcomas that occur in children and they tend to look like developing muscle or fibrous tissue. It is a highly aggressive form of childhood cancer with a variety of subtypes such as embryonal and alveolar which influence the outcome. They can originate in almost any part of the body and are commonly seen in the head and neck, abdomen, chest and bladder. There are around 70 new cases in the UK each year. They are currently treated using a combination of surgery (if possible), chemotherapy and radiotherapy which results in debilitating short and long term side-effects.
Higher Scientific Officer & Lab Reagents