07 July 2020
Elsa sadly died in April 2020 and her parents want the funds raised to contribute to research in to rhabdomyosarcoma.
We are delighted to announce that Hayley and John McGee have donated £30K of Elsa's Trust to Alice's Arc. This is in addition to the £8,425 raised in her memory as part of her funeral in April 2020.
During Elsa's journey with rhabdomyosarcoma Elsa's family and supporters raised in excess of £30K as a back up should they need to pay for treatments abroad. Now, in Elsa's memory, we are talking to Hayley and John about the kind of rhabdomyosarcoma research they would like this to be invested in. For example, there is a potential project relating to embryonal rhabdomyosarcoma, which Elsa had. Elsa is enabling crucial research to go ahead. Elsa, we are doing this for you. You are going to save the lives of children diagnosed with rhabdomyosarcoma in the future. Alice's Arc will always remember and talk about you. You will never be forgotten.