We are pleased to share our Annual Report, which marks ten years since Alice’s Arc was founded. This covers activity & financial reports in the period 1st October 2024 to 30th September 2025. Please Click Here to access the full report.
You can find out more about our goals, research activity, the Arcs, fundraising, parent/patient involvement and engagement in research and the future. In this edition, we also spotlight Ellie’s Arc, in the words of Ellie, who is now living with the long-term effects of her treatment.
Headlines
- £788K raised during this period
- Over £560K invested in rhabdomyosarcoma research during the period
- We now have 37 Arcs based across the UK
- Proud to be funding 13 RMS research projects across research institutions in the UK
- Added a new grant for the University of Oxford to explore the creation of a vaccine treatment for rhabdomyosarcoma
- Our community of parents, patients and other family members continues to grow and contributes to advocacy work
- Hosted a Family Research Engagement day at the Institute of Cancer Research
- Fundraising continues to be driven by a passionate patient community, with ever-increasing corporate donations & partnerships – hosted a 10 year ‘go gold’ gala and participated in a range of major sporting events.
We remain eternally grateful to the families, scientists, clinicians and other medical professionals. This is an ongoing and heart breaking fight against rhabdomyosarcoma. Thanks for always motivating us to persevere. Together we are stronger. This work is for all those who have, and will, have the misfortune of hearing the word ‘rhabdomyosarcoma’.
