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Board of Trustees

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Founders

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Sara Wakeling

Co-Founder/Trustee/CEO

Sara is Alice's Mother.

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David Wakeling

Co-Founder/Trustee

David is Alice’s Dad and, together with Sara, co-founded Alice’s Arc in 2015. David has parented Alice through cancer and has a experience of managing treatment protocols in the UK, the US and the EU over several years. David has also lived through the realities of remission, relapse and loss. David is proud to have conceived the Arcs concept as a way of pooling resources to find a cure and less harsh treatments for rhabdomyosarcoma. David is a partner at A&O Shearman, the international law firm. His practice is focused on innovation within the legal sector and he has received various awards, including from the Financial Times. He heads a team of lawyers which deploy technology to solve for dislocation events, such as Brexit, climate change, insolvency and new regulations. For specific client projects, David has led teams of as many as 500 lawyers, developers and other personnel across 40 jurisdictions. He was the first to pull together a formal joint venture between a large law firm, a management consultant and technology company to deliver better outcomes for his clients. David advises various governments, central banks and trade associations, as well as some of the largest companies in the world.

UK Board

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Sara Wakeling

Co-Founder/Trustee/CEO

Sara is Alice's Mother.

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David Wakeling

Co-Founder/Trustee

David is Alice’s Dad and, together with Sara, co-founded Alice’s Arc in 2015. David has parented Alice through cancer and has a experience of managing treatment protocols in the UK, the US and the EU over several years. David has also lived through the realities of remission, relapse and loss. David is proud to have conceived the Arcs concept as a way of pooling resources to find a cure and less harsh treatments for rhabdomyosarcoma. David is a partner at A&O Shearman, the international law firm. His practice is focused on innovation within the legal sector and he has received various awards, including from the Financial Times. He heads a team of lawyers which deploy technology to solve for dislocation events, such as Brexit, climate change, insolvency and new regulations. For specific client projects, David has led teams of as many as 500 lawyers, developers and other personnel across 40 jurisdictions. He was the first to pull together a formal joint venture between a large law firm, a management consultant and technology company to deliver better outcomes for his clients. David advises various governments, central banks and trade associations, as well as some of the largest companies in the world.

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Dr Natalie Carpenter

Trustee/Freddie's Arc

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Bio

Nick Wakeling

Trustee/Treasurer

Nick is Alice’s uncle and has been involved in the charity since it started in 2015. He qualified as a fellow of the Association of Chartered Certified Accountants, a solicitor of the Supreme Court of England & Wales and a barrister and solicitor of the Supreme Court of Victoria, Australia, and has twenty years' experience in governance, strategic planning, finance and accounting. Nick also has a Bachelor of Laws from the University of Bristol and an MBA from the University of Navarra, IESE Business School in Barcelona.

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Dr Melvin Chua

Trustee/Scientific Advisor

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US Board

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Abbe Pannucci

Director/Abbe's Arc

Abbe Pannucci was diagnosed with stage 4 embryonal rhabdomyosarcoma, aged 10, in November 2010. The tumour was located on the abdominal wall with metastatic lesions on the pelvic bones and sacrum. Abbe was treated with 54 weeks of vincristine, irinotecan, cyclophosphamide, doxorubicin, ifosfamide, etoposide and dactinomycin at Children’s National Hospital, Washington DC as well as five weeks of radiation therapy to each of the metastatic locations at the University of Maryland Medical Center. Abbe is now 24 years old and has been cancer free for over a decade. She lives with the side-effects of the treatment she received. Abbe is passionate about advocating for improved treatments for children diagnosed with cancer. She serves as a patient advocate on the Cancer Grand Challenges team, NexTGen, whose mission is to create CAR T cell therapy for childhood solid tumors. Since graduating from college, Abbe has worked as a researcher at the University of Pittsburgh Hillman Cancer Center. As a board member of Alice’s Arc US Inc, Abbe will help build a network of RMS families across the US and connect with RMS researchers which the charity hopes to invest in.

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Karen Buzard

Director

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Caroline Lapidus

Director

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Gavin Lindberg

Director

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Sara Wakeling

Co-Founder

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