Alice’s Arc is dedicated to finding a cure and kinder, more targeted treatments for those affected by the childhood cancer, rhabdomyosarcoma. By working with major research institutions and leading paediatric oncology hospitals, we aim to fund research that contributes to advancing our scientific understanding of the biology of rhabdomyosarcoma and translates this knowledge into the identification of new drugs and pioneering treatments via clinical trials. This research is crucial in order to improve long term survival outcomes and to minimise long-term side effects.
The children and families impacted by rhabdomyosarcoma are at the heart of our mission and we work closely together to help achieve our goals. We have created a network of families and provide individual Arcs in honour of the children or young people’s journeys with rhabdomyosarcoma. These platforms have multiple purposes and are individually tailored to enable families to tell their story, fundraise, advocate and demonstrate the impact they are making.
In addition, we aim to be a major source of support to families, from diagnosis, treatment, post treatment, relapse, palliative care to loss and survivorship. We deliver this via our family well-being service and Arc’s family support groups.
Effective collaboration is critical in achieving change. Through our strong relationships with major research institutions, hospitals, clinicians and families, we present a global rhabdomyosarcoma voice advocating for change and a future where this disease can be cured safely, using new and cutting-edge treatments.
Alice’s Arc has no paid employees and very low overheads. So, whatever you can give or pledge, you know it will make a difference to a child with cancer.