A children's cancer charity dedicated to funding research into finding a cure and less harsh treatments for Rhabdomyosarcoma.

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Alice’s Arc works with a network of expert scientists and clinicians who focus on rhabdomyosarcoma. They work in major research institutions and leading paediatric cancer hospitals. They include, the Institute of Cancer Research (ICR) in collaboration with Great Ormond Street Hospital (GOSH) and the Royal Marsden Hospital (RMH). The ICR, together with its clinical partner, The Royal Marsden NHS Foundation Trust, forms the largest comprehensive cancer centre in Europe. GOSH is the largest paediatric cancer centre in Europe. Also, The University of Birmingham, Wellcome Sanger Institute and UCL Great Ormond Street Institute of Child Health.

Making the discoveries that defeat cancer.

46

New cases every day

160,000 children diagnosed annually across the globe with cancer
550

Children die each year

Childhood cancer is the number 1 killer of children under 14 years old
4

New Drugs In 20 years

Only 4 new drugs have been approved in the last 20 years to treat childhood cancers
8%

Survival rate on relapse

A relapse from rhabdomyosarcoma generally has a very poor outcome (8-20% survival) as it's not responsive to current treatment.

Our Mission

We have already raised £1,200,000 and now aim to reach £1,500,000 to pay for research to find a cure and better treatments for rhabdomyosarcoma.

Raised: £1,200,000 £1,500,000
  • Year 1

    Target:£105,545

    Higher Scientific Officer & Lab Reagents

  • Year 2

    Target:£179,558

  • Year 3

    Target:£214,897

  • Year 4

    Target:£333,333

  • Year 5

    Target:£333,333

  • Year 6

    Target:£333,334

Our Community

Read all the latest fundraising news, charity news and commentary on childhood cancer.

ICR makes progress researching Rhabdomyosarcoma

The ICR team continue to make progress researching rhabdomyosarcoma using the funds raised by Alice's Arc

Only 8% of new cancer drug authorisations are for children - this needs to improve

The ICR has published a report called 'From patent to patient - analysing access to innovative cancer drugs

Alice's Arc co-hosts European Paediatric Soft tissue sarcoma Study Group (EpSSG) Winter Meeting 2019

The EpSSG meeting brings together international professionals devoted to treating children with soft tissue sarcoma

Laura Trott, local MP, invites Sara Wakeling to 10 Downing Street

Sara was delighted to take up the opportunity to attend this reception in celebration of International Woman's Day

Alice's Arc is delighted to appoint Natalie Carpenter as a new trustee for the charity

Natalie, a trainee psychologist, is the mother of two boys, both diagnosed with cancer within months of one another.

Hayley and John McGee entrust £30K of Elsa's Trust to Alice's Arc

Elsa sadly died in April 2020 and her parents want the funds raised to contribute to research in to rhabdomyosarcoma.

Frontline and Relapse Study in Rhabdomyosarcoma (FaR-RMS) clinical trial is now open

FaR-RMS opened in September 2020 and is now open in ten sites in England and Scotland and several sites across Europe.

Alice's Arc commits to investing £1.1million in to rhabdomyosarcoma research projects over the next three years

We are delighted to be supporting five innovative research projects led by several leading cancer research centres

Alice's Arc invests £247,340 in research exploring the use of liquid biopsies in the treatment of children with rhabdomyosarcoma

Assessing The Clinical Value For ct-DNA In Blood To Monitor The Response To Treatments and Identify Disease Recurrence

Alice’s Arc invests £220K in new fusion-negative rhabdomyosarcoma (RMS) research project with the University of Birmingham

This project will increase understanding of RAS gene pathways in RMS with a focus on DNA repair and replication stress.

The Carrot Community launches in honour of Freddie Carpenter, who died in October 2018

Freddie's family are inviting you to become part of this special community this Easter and support Alice's Arc

Team Ben's New Forest Rattler sporting challenges raises a tremendous £60K

48 people ran, biked and swum to raise money for Alice's Arc, The GOSH charity and Spread a Smile.

The Little Tigers Charity Raffle raises an astonishing £16K

Hope With Gaspard sold 2500 tickets with incredible prizes such as a Louboutin bag, VIP festival tickets and much more

International project Alice's Arc jointly funded uncovers genetic changes underlying the development of rhabdomyosarcoma

The work has identified genetic changes that link to the aggressiveness, early age onset and location in the body.

Annual Report: 30th September 2019 to 30th September 2020

Please read the latest edition of our annual report to get a snapshot of our activity for the year and our future plans.

WATCH THIS SPACE FOR THE LAUNCH OF THE ARCS. COMING SOON

Rhabdomyosarcoma is constantly evolving. Alice's Arc must also stay nimble and adapt to achieve our mission

Jessica's Charity Raffle raises a brilliant £7K

Jessica's fantastic raffle received phenomenal support from her friends, family and community.

Alice's Arc London Landmarks Half Marathon team raise over £19K

10 runners took on this challenge in support of Alice's Arc and it was so touching to cheer the team on.

Logo for Frontline and Relapse Rhabdomyosarcoma Study (FaR-RMS) is launched

The logo was designed by a young cancer survivor after input from parents, patients, clinicians and scientists.

Almost £75K raised in honour of Sophie Fairall, who passed away on the 18th September 2021

10 year old Sophie's journey with rhabdomyosarcoma has attracted significant attention throughout the UK

Go gold for Childhood Cancer Awareness Month (CCAM) - September 2021

Working with our Arcs family network we initiated a campaign to raise awareness and funds for rhabdomyosarcoma

Royal Parks Half Marathon 2021 raises staggering £150K for Alice's Arc

On Sunday 10th October, 100 runners from across the Arcs network ran the amazing Half through the Royal Parks of London

Alice's Arc invests £266,199 into a project designed to develop CAR T-cell treatment for rhabdomyosarcoma

Led by Dr Sam Behjati at Wellcome Sanger and Dr Karin Straathof at UCL Great Ormond Street Institute of Child Health

Alice's Arc welcomes four new Arcs to it's unique network created for rhabdomyosarcoma families

We now have 10 Arcs across the UK, from Northern Ireland, the North, the Midlands, London and the South of England.

Annual Report: 2018-2019

This document provides a snapshot of our year, our plans for the future and our financial statements over the timeframe.

Published 07/2020

Alice's Arc launches marketing brochure

This is our information booklet which illustrates what we do, why we do it, how we do it and how you can help.

Published 07/2019

Annual Report: 2019-2020

This document provides a snapshot of our year, our plans for the future and our financial statements over the timeframe.

Published 07/2021