We are delighted to announce that we will be providing funding for two roles at the European Paediatric Soft tissue sarcoma Study Group (EpSSG), lasting for one year initially. The EpSSG exists to promote and manage clinical trials, encourage and facilitate clinical and basic science research, foster optimal standards of care, organise educational meetings for its members and other professionals, and advocate for patients. It collaborates with other similar groups in Europe, North America and elsewhere.
The first role is a Scientific Project Manager who is responsible for managing essential activities such as the management of clinical trials, the facilitation of clinical and basic research, the creation of European treatment guidelines, organising educational activities and working with patient advocates. This role is key to the organisation of the body, the support of the International Data Centre and for dissemination and communication.
The second role is a Statistician as part of the EpSSG’s International Data Centre. This role focuses on the collation, assessment, analysis, reporting and dissemination of data from clinical trials run by the EpSSG such as RMS 2005. It is absolutely critical that data from clinical trials is managed and utilised effectively. There is no point having the data if it is not put to impactful use.
It’s critically important that we support the work of the EpSSG who enable clinical trials such as FaR-RMS to exist. The management of these clinical trials and the interrogation of the rich data they produce is a key component of the research process and contributes to the design of future research questions. The EpSSG works hard to set the international agenda of rhabdomyosarcoma and this will influence the future direction of FaR-RMS.