Alice’s three month off relapse treatment scans are clear

Following Alice’s relapse in February 2018 her three month off 2nd treatment scans are clear of cancer. Alice received six rounds of VIT chemotherapy alongside the AMORE treatment in Amsterdam. Alice spent three weeks in Amsterdam, where she received surgery to remove the tumour, 3 days of brachytherapy which was given every two hours 24 hours a day and a second surgery to close up the wound following completion of brachytherapy.

Alice’s Arc is delighted that the VIT chemo in combination with the AMORE procedure in Amsterdam has given Alice another opportunity to enjoy a ‘normal’ life as a 7 year old. AMORE currently has to be self funded by families whose children meet the criteria for the procedure. We believe it should be made available as a treatment option on the NHS for head and neck rhabdomyosarcoma patients. VIT chemo alone would only have prolonged Alice’s life. AMORE gives a chance of a cure which is difficult to achieve after a relapse of rhabdomyosarcoma.

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Sara Wakeling is a patient advocate on the Cancer Grand Challenge, NexTGen.
Delighted to be invited as speakers representing the parental perspective of rhabdomyosarcoma.
Please consider participating in a research interview as part of the REFoRMS (Relapsed and Refractory Rhabdomyosarcoma) study, led by the University of York.