Since Finn’s death in June 2018, Finn’s mother and family have injected their energy in to fundraising for the vital research needed to make progress understanding rhabdomyosarcoma. They hope that this research will lead to earlier diagnosis and the development of less toxic drugs required to treat the disease. Finn’s disease took some time to diagnose as a result of the lack of investment in to researching rhabdomyosarcoma. By the time he was diagnosed his disease had spread to multiple locations in his body. Their fundraising will make a difference to a child diagnosed with the disease in the future. Finn’s consultant from GOSH, Dr Olga Slater gave a poignant speech stressing the need for more research to help these children.