Beanie was a bright and happy 2-year-old who was the centre of his parent’s world, excelling at all of his milestones as he developed into a confident and caring toddler. Around the time of his second birthday, Beanie had become unwell with a swollen tummy and became easily upset, his diagnosis came following several trips to see the doctor and eventually a hospital admission.
The disease presentation was not typical of Rhabdomyosarcoma and it was initially thought to be Neuroblastoma. Following further investigatory scans, multiple tumors were found throughout his torso and it was confirmed to be Rhabdomyosarcoma.
Heartbreakingly the disease, along with its aggressive presentation, gave a bleak outlook, with a statistic of just 10% survival rate, leaving his family stunned.
At the end of November 2019, Beanie began an incredibly intensive treatment protocol. The chemotherapy these children have to endure is brutal and Beanie had a severe reaction resulting in monitoring by the ICU. This resulted in a change in his chemotherapy regime. After several weeks in hospital, he made it home for what was to be his last Christmas.
In March 2020, after several rounds of chemo, Beanie was beginning to vomit more than the expected side effects and following another scan was found to have disease progression to the brain and spine. Sadly, this meant that his journey was coming to an end and there was nothing more that could be done.
Beanie’s family decided to take him home and spend what time they had left together making the memories they could during lockdown, watching the sunrise, painting, reading, setting off fireworks, sitting under the stars, getting visits from a fire engine and playing.
Beanie died peacefully in his mother’s arms on April 22nd 2020, leaving his family and those who knew him heartbroken.