Gaspard's Arc

Gaspard Ronsseray

Gaspard, aged 4, was diagnosed in December 2018 with stage 3 prostate embryonal rhabdomyosarcoma at Great Ormond Street Hospital. He is currently free from cancer and undergoes regular MRI scans to monitor any changes.

Gaspard's Story...

Gaspard was diagnosed at age 3, with stage 3 prostate rhabdomyosarcoma with a large 10x11cm tumour, involving bladder and lymph nodes. The tumor was so large that it was blocking most of his vital organs. Before the diagnosis, Gaspard experienced severe constipation, tummy pain and leg pains. Gaspard was rushed to Great Ormond Street Hospital in December 2018 as he could not urinate and his parents were given the diagnosis after tests and scans. He had to have 2 nefrostomies placed to drain his kidneys, a catheter to drain his bladder and a stoma bag to drain his bowel. Gaspard’s treatment involved 9 cycles of Ifosofamide, Vincristine, Actinomycin (IVA) chemotherapy and 28 days of Proton Therapy in USA. Currently he is doing 6-12 months maintenance chemotherapy treatment. His response has been positive and the tumour has shrunk from 10cm to less than 2cm. Gaspard is French and is part of a family of 5, with two sisters. His parents Benjamin and Caroline have lived in London for over 15 years and work in investment banking and financial services. They have set up a foundation called Hope With Gaspard to raise funds for Alice’s Arc and to promote awareness of Gaspard’s journey and childhood cancer.

What was your journey with cancer like?

Gaspard kept his smile and innocence through out his cancer journey. His strength and courage have made his parents very proud of him.

What changes would you like to see for children diagnosed in the future?

We need to see more awareness for GP’s around rhabdomyosarcoma and sarcoma cancers in general. There needs to be more communication between families affected by cancer and more communication around treatment options and drugs so families can make well informed decisions. There also need to be better treatments and clinical trials available for rhabdomyosarcoma.

News

Read all the latest fundraising news, charity news and commentary on childhood cancer.

First RMS research grant made in the USA in collaboration with St. Baldricks EPICC team.
Read all about what happened from 1st October 2022 to 30th September 2023 in our Annual Report.
Family Research Day at the Sanger Institute
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Our Mission

We have already raised £4,000,000 and now aim to reach £5,000,000 to pay for research to find a cure and better treatments for rhabdomyosarcoma.
Raised £3,500,000